Our aim is to support people affected by hereditary brain aneurysms through accessible information and support. We want to build our organisation based on your experiences and provide a platform for people impacted by the hereditary condition to be heard.
And we want to collaborate with clinicians to increase awareness and work with researchers to further understand the genetic causes of this rare disease.
We’re a new and growing not-for-profit organisation and there are many ways you can support our work and get involved. We'd love to hear your thoughts on how we can develop as an organisation. And if you'd like to help shape our work and be involved through our upcoming Advisory Panel and Patient Forum, email email@example.com