Contact HBA Support

Our aim is to support people affected by hereditary brain aneurysms through accessible information and support. We want to build our organisation based on your experiences and provide a platform for people impacted by the hereditary condition to be heard.

And we want to collaborate with clinicians to increase awareness and work with researchers to further understand the genetic causes of this rare disease. 

We’re a new and growing not-for-profit organisation and there are many ways you can support our work and get involved. We'd love to hear your thoughts on how we can develop as an organisation. And if you'd like to help shape our work and be involved through our upcoming Advisory Panel and Patient Forum, email 

Get involved with HBA Support

If you have been impacted by familial or hereditary brain aneurysms, we need your help. Sharing your story could help other people and improve understanding across the NHS and in the research community. We’re also looking for skilled volunteers to help grow our new organisation and patient representatives to join our patient forum to help guide how we grow and how we achieve our goals.

If you or your family have been impacted by hereditary brain aneurysms and you have skills and time to share, please get in touch. Our new and friendly organisation would love to hear from you.


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HBA Support, CIC
Community Interest Company (CIC) Company number: 13428276.

HBA Support is a voluntary and non-medical organisation. We take no responsibility for an individual’s health. For any concerns or worries, please always speak to your GP or a clinical professional.