Privacy Policy

Hereditary Brain Aneurysm Support (HBA Support) respects your privacy and is committed to protecting it with this Privacy Policy. This policy describes the types of information HBA Support collects from you, how it is kept and what steps we take to ensure your information is kept confidential and safe.

We reserve the right to make any changes to this Privacy Policy and recommend you visit this page regularly to check for updates.

What information do we collect?

We use Google Analytics and Facebook cookies to track activity on our website, including IP addresses, unique IDs and ClientIDs. This is non-personal public data.
Most of the voluntarily provided personal information we process is provided to us directly by you for one of the following reasons:

Under the UK General Data Protection Regulation (UK GDPR), the lawful bases we rely on for processing this information are:
(a) Your consent. You are able to remove your consent at any time. You can do this by contacting
(b) We have a legitimate interest in the services and support which people need.

How do we use your data?

We use data to help monitor our website, help understand audiences and activity on our website, help respond to enquiries and to process sign-ups to our newsletter. We will not share your data with Third Parties or external organisations. 

How we store your personal information

Your information is securely stored. We keep personal information such as email addresses for no longer than necessary to achieve the purpose for which personal data were collected or processed, we anticipate this would be for a maximum of 12 months. We will then dispose of your information by deleting all records from our databases and records.

Your data protection rights

  • Under data protection law, you have rights including:
  • Your right of access - You have the right to ask us for copies of your personal information.
  • Your right to rectification - You have the right to ask us to rectify personal information you think is inaccurate. You also have the right to ask us to complete information you think is incomplete.
  • Your right to erasure - You have the right to ask us to erase your personal information in certain circumstances.
  • Your right to restriction of processing - You have the right to ask us to restrict the processing of your personal information in certain circumstances.
  • Your right to object to processing - You have the the right to object to the processing of your personal information in certain circumstances.
  • Your right to data portability - You have the right to ask that we transfer the personal information you gave us to another organisation, or to you, in certain circumstances.
  • You are not required to pay any charge for exercising your rights. If you make a request, we have one month to respond to you.

Please contact us at if you wish to make a request.

How to raise a concern

If you have any concerns about our use of your personal information, you can make a complaint to us at:

You can also contact the ICO if you are unhappy with how we have used your data.

The ICO’s address is:
Information Commissioner’s Office
Wycliffe House
Water Lane
Helpline number: 0303 123 1113
ICO website:

Copyright © 2023 HBA Support CIC  |  All Rights Reserved
HBA Support, CIC
Community Interest Company (CIC) Company number: 13428276.

HBA Support is a voluntary and non-medical organisation. We take no responsibility for an individual’s health. For any concerns or worries, please always speak to your GP or a clinical professional.