We’re just at the start of our journey to create a patient-led organisation with a small team of part-time staff. As a new not-for-profit, we are dependent on donations to help us achieve our goals. 

Our ambition is to create and signpost information, resources and peer support for people living with hereditary brain aneurysms.  

And in the coming years, we aim to improve the patient experience by working with clinicians, ensuring people can access screening, treatment, and support far sooner. And we want to work with researchers and genetics so we can build a better understanding of this rare disease. Ultimately, we want to bring patients, clinicians and researchers together to save lives, sooner. 


Join Our Facebook Group

Seeking support and information?

Receiving a diagnosis of a hereditary brain aneurysm can be overwhelming, but remember that you're not alone. Our Hereditary Brain Aneurysm Facebook page can support you and provide a wealth of information.

We encourage you to:

Connect with Our Supportive Community: Join our Facebook group to connect with others diagnosed with hereditary brain aneurysms and their families. Share experiences, ask questions, and find emotional support from others.

Reach Out: If you have any specific questions or concerns about the diagnosis process or hereditary brain aneurysms in general, feel free to reach out to our Facebook group. Our compassionate community and experienced team are here to provide the support you need.



If you are interested in supporting our cause, we offer various ways to make a meaningful impact:

In memoriam giving

Pay tribute to loved ones who have passed away by making a donation in their memory. Additionally, we can provide information on how funeral collections can be directed towards HBA Support.

Legacy giving

Consider leaving a lasting gift by including HBA Support in your will. We can provide guidance and support in this process to ensure your legacy continues to make a difference.

Research collaborations

If you are passionate about accelerating research or funding a scholarship, we invite you to get in touch. Together, we can explore opportunities for impactful collaborations.

Major giving

For those who wish to explore the transformative impact of making a major gift to our organisation, we encourage you to reach out. We would be delighted to discuss how your support can make a significant difference.

We value each and every contribution and are grateful for your support in advancing our cause. To discuss any of these giving options or explore other ways to contribute, please contact our fundraising team by emailing 

Copyright © 2023 HBA Support CIC  |  All Rights Reserved
HBA Support, CIC
Community Interest Company (CIC) Company number: 13428276.

HBA Support is a voluntary and non-medical organisation. We take no responsibility for an individual’s health. For any concerns or worries, please always speak to your GP or a clinical professional.