Its hard to believe that nearly two months ago, we were launching HBA Support to the public, setting out our mission to provide much needed information and guidance for people impacted by hereditary brain aneurysms.
We are looking for people to join our patient panel and ensure the views of people affected by familial brain aneurysms, including carers and family members, are at the heart of HBA Support.
In addition to its patient panel, Hereditary Brain Aneurysm Support is looking for genomic, research and third sector experts to join its advisory panel.
In April 2022, Dawn Roberts, a 63 year old Optometrist from West Yorkshire, found out that she has a 9mm saccular brain aneurysm. Read her story.
Find out about our recently published Targeted literature Review that compiles literature on the rare disease of hereditary brain aneurysms in one, accessible, resource.