About Us
Introducing Hereditary Brain Aneurysm Support
Vision
Guided by our community, HBA Support is the trusted place for peer support, information and research on Hereditary Brain Aneurysms.
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By amplifying and supporting the voice of the people affected, we are moving forward our understanding of this life-changing rare disease together, working collaboratively with our partners for the good of families affected today and future generations.
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Mission
We have built a community of people sharing experiences and insights into hereditary brain aneurysms, built networks, supported families, and advanced our understanding of the condition as a genetic, life-changing disease.
We are collaborating and partnering with patients, clinicians, researchers, healthcare professionals, and stakeholders to increase awareness, improve patient care, and save lives.
Our Board of Trustees
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Our Advisory Team.
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Become an Advisor
Be part of our new Patient Panel
We are looking for people to join our patient panel and ensure the views of people affected by familial brain aneurysms, including carers and family members, are at the heart of HBA Support.
Join our advisory Panel
We're recruiting for an Advisory Panel to help shape our work, especially anyone with a genetic counselling, clinical or not-for-profit background. We're just at the start of our journey, so this is a fantastic opportunity to impact people affected by this rare disease significantly.
Our Policies
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More about us
Find out more about why we exist and who we support.