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We’re just beginning our journey, building a patient-led organisation with a small team of part-time staff. As a new not-for-profit, we depend on donations to help us achieve our goals.


Our ambition is to create and signpost information, resources and peer support for people living with hereditary brain aneurysms.  We've already begun with three patient guides freely available for anyone recently diagnosed with familial intracranial aneurysm syndrome.

In the coming years, we aim to improve the patient experience by working with clinicians, ensuring people can access screening, treatment, and support far sooner. We want to work with researchers and genetics so we can build a better understanding of this rare disease.


Our Research Framework and Targeted Literature Review are the first step in achieving this long-term goal. That is why donations are so important - no matter what the amount. Ultimately, your support can bring patients, clinicians and researchers together to save lives sooner. 

Donate today or find out more ways to fundraise for HBA Support below.



If you are interested in supporting our cause, we offer various ways to make a meaningful impact:


Fundraise for us


Whether you choose to run a marathon, host a bake sale or do a sponsored skydive, we can provide you with resources to raise money on our behalf. Any amount raised, no matter how small, will make an enormous difference to our community.



In memoriam giving

Pay tribute to loved ones who have passed away by donating in their memory. Additionally, we can provide information on how funeral collections can be directed towards HBA Support.

Legacy giving

Consider leaving a lasting gift by including HBA Support in your will. We can provide guidance and support in this process to ensure your legacy continues to make a difference.

Research collaborations

We invite you to contact us if you are passionate about accelerating research or funding a scholarship. Together, we can explore opportunities for impactful collaborations.

Major giving

For those who wish to explore the transformative impact of making a major gift to our organisation, we encourage you to reach out. We would be delighted to discuss how your support can make a significant difference.

We value each and every contribution and are grateful for your support in advancing our cause. To discuss any of these giving options or explore other ways to contribute, please get in touch with our fundraising team by emailing 

Join Our Facebook Community

Are you seeking community support and information?

Receiving a diagnosis of a hereditary brain aneurysm can be overwhelming, but remember that you're not alone. Our Hereditary Brain Aneurysm Facebook page can support you and provide a wealth of information.

We encourage you to:

Connect with Our Supportive Community: Join our Facebook group to connect with others diagnosed with hereditary brain aneurysms and their families. Share experiences, ask questions, and find emotional support from others.

Reach Out: If you have any specific questions or concerns about the diagnosis process or hereditary brain aneurysms in general, feel free to reach out to our Facebook group. Our compassionate community and experienced team are here to provide the support you need.

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