Research study exploring what it means to live with familial (hereditary) intracranial aneurysms (FIAs) by Lily George, MSc Genetic and Genomic Counselling at Cardiff University

If you've been affected by a brain aneurysm, please share your experiences and views on how imaging, risk and new technology like artificial intelligence are used in care.

Hereditary Brain Aneurysm Support is proud to launch the Patient and Family Advisory Panel (PFAP), a new voluntary group bringing together the voices of people and families affected by brain aneurysms to help shape the future of our work.

Dawn Roberts discovered she had a hereditary brain aneurysm after her daughter suffered a life-threatening rupture. Following successful endovascular surgery to treat the aneurysm, she is now three years post-treatment and living life to the full. Dawn describes herself as grateful and more positive than ever, enjoying time outdoors with her animals and family. As a trustee for HBA Support, she now uses her experience to help others feel informed and reassured.

The ‘Kim Kardashian Effect’ – Sharing Facts not Fear about brain aneurysms in the National Media

After menopause women are 2.2 times more likely to develop aneurysms than men. We pledge to create greater awareness, research, and support.

Our first Brain Aneurysm Friends Peer Support Group showed the value of having a safe space where people can talk, share, and simply be understood. Thank you to those who joined this first session and helped create such a positive, encouraging atmosphere.

Being diagnosed with a brain aneurysm can feel overwhelming. There are often more questions than answers, and it can be hard to know what’s within your control. At HBA Support, we've created a guide to give people the best possible information to live well with their condition.

A world-leading, landmark research initiative aims to lay the foundation for the country’s first genetic screening programme for brain aneurysms—potentially reshaping how the NHS identifies and manages a life-threatening but often overlooked condition that can devastate families for generations.