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We’re here to help you live well with a brain aneurysm

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Being diagnosed with a brain aneurysm can feel overwhelming. There are often more questions than answers, and it can be hard to know what’s within your control. At HBA Support, we want to give people the best possible information to live well with their condition.


In our recent patient survey, many people told us that while they wanted to understand their medical risks, they also struggled to find clear advice on the everyday, practical side of living with a brain aneurysm. From questions about flying to exercising, people were searching for guidance that simply wasn’t available.


This year's survey tells us the same thing as we are hearing again and again from our community - too many people affected by neurological conditions still can’t get the care and support they need.

That’s why we’ve created a new resource: Living Well With a Brain Aneurysm – a Lifestyle Guide reviewed by NHS by a leading NHS neurosurgeon, designed to answer the questions patients told us matter most. Every aneurysm and every person is unique.


This guide isn’t medical advice, and it can’t replace the support of your GP or consultant.  But it does bring together practical steps you can take day to day to support your health and reduce some of the risks linked to aneurysms.






To support this, we’re also produced a special episode of our Brain Aneurysm and Beyond Podcast on living well with a brain aneurysm. You can listen and watch it here soon.

 

Why lifestyle matters


While some brain aneurysm risks are genetic or linked to underlying conditions, many are influenced by lifestyle, especially high blood pressure and smoking. The good news is that these are areas where you can take real, positive action.


Keeping your blood vessels healthy is one of the best things you can do, not only to protect against future aneurysm problems but also to support your heart and overall wellbeing. And the changes don’t have to be big or drastic. Small, sustainable steps can make a real difference.

 

What you’ll find in the guide


Our new lifestyle guide shares clear, practical information on:


  • Blood pressure — why it matters most, how to track it, and what to aim for

  • Smoking — the link to aneurysms and where to find support if you want to quit

  • Medication and drugs — what to check with your doctor before making changes

  • Eating well — tips for vascular and brain health, including a Mediterranean-style approach

  • Alcohol — what’s safe and how it may affect your treatment

  • Exercise — the benefits of regular movement and how to start small

  • Mental health — ways to cope with fear, anxiety and health worries

  • Monitoring and screening — what ongoing care may look like


Above all, the guide is about reassurance: you are not alone in this. There is support available, and small steps really can help you feel more in control of your health.


We hope it gives you and your family helpful information to support daily life and wellbeing.


Our special thanks goes to Prof. Diederik Bulters from the University of Southampton Hospital Trust for his valuable support in creating our Lifestyle Guide.



Resources and support


Visit our support page for free resources and patient stories from our community.



Contact us by email - support@hbasupport.org

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Hereditary Brain Aneurysm Support (HBA Support) is a charity registered in England and Wales. Registered Charity Number 1210213

Our registered address is HBA Support, The Old Police Station, South Street, Ashby de la Zouch, Leicestershire, LE65 1BR

 

Hereditary Brain Aneurysm Support provides information and support for individuals and families affected by brain aneurysms with a proven or suspected hereditary link. We also aim to raise awareness and help people understand brain aneurysms better. 

 

Note: This information is intended for educational purposes and should not replace professional medical advice. Always consult a healthcare professional for personalised guidance.

For site issues, please email support@hbasupport.org

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