Latest News and Stories

Department of Health and Social Care published the Cardiovascular Disease Modern Services Framework (MSF) but brain aneurysms and SAHs are missing.

Brain aneurysm survivor and His Majesty's Lord-Lieutenant of Leicestershire, Mike Kapur OBE CStJ, has accepted an invitation to become an Ambassador for HBA Support, the UK's first charity dedicated to supporting people affected by brain aneurysms and families with increased or hereditary risk.

How Mike Kapur OBE, His Majesty's Lord-Lieutenant of Leicestershire, turned his brain aneurysm rupture into positive action

Read our first Impact Report, a report shaped by patients, families, survivors and supporters who know what it means to live with hereditary brain aneurysms.

“Scan‑anxiety” is real. Wherever you are in your journey - newly diagnosed with a brain aneurysm, years into monitoring, post‑treatment, or supporting someone you love - your feelings around scan time are valid. They are shared. And you are not alone.

Our open letter has now been delivered directly to the Secretary of State for Health and Social Care, via supporting MPs, and into the hands of key decision makers across DHSC and NHS England — ensuring our community’s voice is heard clearly, loudly, and unavoidably by those with the power to act.

After nearly two years research and listening to our community, we’re proud to share with you our report “From Silent Risk To Real Recognition: Ending the neglect of hereditary brain aneurysms and transforming care." The report reveals fragmented care pathways, lack of psychosocial support, inconsistent access to screening, and hundreds of preventable ruptures every year.

My healthy, 49-year-old mother was rushed to the ER with sudden nausea and within hours doctors found three brain aneurysms, one already ruptured

Research study exploring what it means to live with familial (hereditary) intracranial aneurysms (FIAs) by Lily George, MSc Genetic and Genomic Counselling at Cardiff University

Hereditary Brain Aneurysm Support is proud to launch the Patient and Family Advisory Panel (PFAP), a new voluntary group bringing together the voices of people and families affected by brain aneurysms to help shape the future of our work.

Dawn Roberts discovered she had a hereditary brain aneurysm after her daughter suffered a life-threatening rupture. Following successful endovascular surgery to treat the aneurysm, she is now three years post-treatment and living life to the full. Dawn describes herself as grateful and more positive than ever, enjoying time outdoors with her animals and family. As a trustee for HBA Support, she now uses her experience to help others feel informed and reassured.

The ‘Kim Kardashian Effect’ – Sharing Facts not Fear about brain aneurysms in the National Media

Being diagnosed with a brain aneurysm can feel overwhelming. There are often more questions than answers, and it can be hard to know what’s within your control. At HBA Support, we've created a guide to give people the best possible information to live well with their condition.

A world-leading, landmark research initiative aims to lay the foundation for the country’s first genetic screening programme for brain aneurysms—potentially reshaping how the NHS identifies and manages a life-threatening but often overlooked condition that can devastate families for generations.

The Dear Annie I Hate You play is a conversation and a window into brain aneurysms that urgently needs a louder voice and a better understanding. Read more about the play and the emotions from a brain aneurysm patients perspective.

When Lorna Meijer lost her mother, Connie, suddenly in April 2024 to a ruptured brain aneurysm, the shock was overwhelming.

HBA Support launches research reveals shocking gaps in screening and unequal care for people with hereditary brain aneurysms.

Unruptured brain aneurysms are fragile bulges in the walls of brain arteries. While often asymptomatic, they carry the potential to...