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Latest News and Stories
Families living with familial (hereditary) brain aneurysms: Lily George’s research
Research study exploring what it means to live with familial (hereditary) intracranial aneurysms (FIAs) by Lily George, MSc Genetic and Genomic Counselling at Cardiff University
Introducing our new Patient and Family Brain Aneurysm Advisory Panel – Your Community Needs You!
Hereditary Brain Aneurysm Support is proud to launch the Patient and Family Advisory Panel (PFAP), a new voluntary group bringing together the voices of people and families affected by brain aneurysms to help shape the future of our work.
Dawn Roberts – finding balance and gratitude after brain aneurysm treatment
Dawn Roberts discovered she had a hereditary brain aneurysm after her daughter suffered a life-threatening rupture. Following successful endovascular surgery to treat the aneurysm, she is now three years post-treatment and living life to the full. Dawn describes herself as grateful and more positive than ever, enjoying time outdoors with her animals and family. As a trustee for HBA Support, she now uses her experience to help others feel informed and reassured.
The ‘Kim Kardashian Effect’ – Sharing Facts not Fear about brain aneurysms in the National Media
The ‘Kim Kardashian Effect’ – Sharing Facts not Fear about brain aneurysms in the National Media
We’re here to help you live well with a brain aneurysm
Being diagnosed with a brain aneurysm can feel overwhelming. There are often more questions than answers, and it can be hard to know what’s within your control. At HBA Support, we've created a guide to give people the best possible information to live well with their condition.
PRESS RELEASE: World-first UK genetics study, ROAR-DNA, could transform NHS care for brain aneurysms
A world-leading, landmark research initiative aims to lay the foundation for the country’s first genetic screening programme for brain aneurysms—potentially reshaping how the NHS identifies and manages a life-threatening but often overlooked condition that can devastate families for generations.Â
Dear Annie, I Hate You! A Brain Aneurysm play shouting bravely about our silent condition
The Dear Annie I Hate You play is a conversation and a window into brain aneurysms that urgently needs a louder voice and a better understanding. Read more about the play and the emotions from a brain aneurysm patients perspective.
Connie’s Legacy – Finding Support, Strength and Purpose After Sudden Loss
When Lorna Meijer lost her mother, Connie, suddenly in April 2024 to a ruptured brain aneurysm, the shock was overwhelming.
Exposing the gaps in care for hereditary brain aneurysms
HBA Support launches research reveals shocking gaps in screening and unequal care for people with hereditary brain aneurysms.
Unraveling the Risk of Unruptured Brain Aneurysms: The ROAR Study
Unruptured brain aneurysms are fragile bulges in the walls of brain arteries. While often asymptomatic, they carry the potential to...
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