Get Involved
We support people affected by hereditary brain aneurysms through accessible information and support.
​
We want to build our organisation based on your experiences and provide a platform for people impacted by this hereditary condition to be heard.
We are building a community, a designated safe space to find support and information, share stories and create a network.
We want to collaborate with clinicians to increase awareness and work with researchers further to understand the genetic causes of this rare disease.
We’re a now a charity organisation; you can support our work and get involved in many ways.
Take part in research
HBA Support is committed to improving the care for those impacted by hereditary brain aneurysms. The more that brain aneurysms are understood, the better the possible outcomes for patients and their families.
We're interested in working with individuals and organisations who share similar goals and values so that we can create new opportunities, support people affected and improve patient support and research.
As a charity, everything we do is for the benefit of people living with brain aneurysms patients and their families. We’re open for conversations, collaborations and partnerships that support our community.
​
Take part in research
​
We are working with researchers and industry to further our understanding of hereditary brain aneurysms and improve the diagnosis, screening, treatment and support experience of people and families affected.
​
Latest Research Opportunities
.jpg)
.jpg)
Fundraise and Donate
HBA Support is a charity organisation. To keep supporting people affected by hereditary brain aneurysms, we rely on the generous support of donors and the fundraising community. Any funds received, however large or small, will make an enormous difference to us. So if you fancy a sponsored run, walk, climb or bake sale, please do get in touch and we’ll support!
​
• Fundraise for us - If you are setting up your own fundraising challenge, you can easily set up a donation page. Simply go to our Local Giving page, click the "Fundraise for us" button below our details. We're very happy to help you set one up - drop us a line at support@hbasupport.org.
​
Hike for Hope 2025
Are you ready for a challenge that will take you to new heights ? Fancy joining us for an adventure that makes a difference?​ Sign up for our sponsored Hike for Hope that will take place on Sunday 29th June 2025 with each participant having a fundraising target of £250.
​
Together as a team, we will conquer the Kinder Scout Hike, Pennine Way in the Derbyshire Peaks. This is a moderately challenging hill walk retracing the historic route of the famous mass trespass onto Kinder Scout. Hikers are expected to have a good level of fitness and be able to safely tackle the 9 miles (14½ kilometres) and approx. 4-5 hours of guided walking. The Hike will take in an ascent of 1,641 feet (500 metres) and be led by four qualified mountain leaders.
​
Connect with others & share your story
We want to ensure that no one goes through their journey alone. We want to help people connect with others in a similar situation, share experiences of hereditary brain aneurysms and provide support, regardless of where they are on their journey. One way to help is sharing your story. If you would like to share your experience with others, it can really help others understand they are not alone. If you’re interested in connecting with others, hearing other people's stories, or would like to share yours contact us at Support@hbasupport.org, join us on Facebook or sign up to our newsletter below.
Volunteers needed
We would appreciate help from volunteers who can spare some time to help us grow our charity. If this sounds like you, please get in touch. If you or a family member has been impacted by the hereditary condition, we’d love to hear from you. We have varied opportunities available, and your time and energy makes a real difference.
The more that brain aneurysms are understood, the better the possible outcomes for patients and their families.
We're interested in working with individuals and organisations who share similar goals and values so that we can create new opportunities, support people affected and improve patient support and research.
HBA is a Charity. Everything we do is for the benefit of people living with brain aneurysms patients and their families.
We are committed to open and transparent practice and putting in place a robust independent governance structure which includes a patient forum, an advisory panel and an executive committee. If you’d like to get involved and help grow our community then get in touch.