Get Involved
We support anyone affected by brain aneurysms and families with increased risk, giving balanced and accessible information and support.
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We are building a community, a safe space to find support and trusted information, share stories and create a network.
We also want to collaborate with policy makers, GP's and clinicians to increase awareness, improve diagnostic, treatment, recovery and care for patients and families and work with researchers to further understand the increased risk factors of brain aneurysms.
We’re a now a charity organisation; you can support our work and get involved in many ways.
Take part in research
HBA Support is committed to improving the care for those impacted by hereditary brain aneurysms. The more that brain aneurysms are understood, the better the possible outcomes for patients and their families.
We're interested in working with individuals and organisations who share similar goals and values so that we can create new opportunities, support people affected and improve patient support and research.
As a charity, everything we do is for the benefit of people living with brain aneurysms patients and their families. We’re open for conversations, collaborations and partnerships that support our community.
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Take part in research
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We are working with researchers and industry to further our understanding of hereditary brain aneurysms and improve the diagnosis, screening, treatment and support experience of people and families affected.
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Latest Research Opportunities
Volunteers needed
We would appreciate help from volunteers who can spare some time to help us grow our charity. If this sounds like you, please get in touch. If you or a family member has been impacted by the hereditary condition, we’d love to hear from you. We have varied opportunities available, and your time and energy makes a real difference.
Connect with others & share your story
We want to ensure that no one goes through their journey alone. We want to help people connect with others in a similar situation, share experiences of hereditary brain aneurysms and provide support, regardless of where they are on their journey. One way to help is sharing your story. If you would like to share your experience with others, it can really help others understand they are not alone. If you’re interested in connecting with others, hearing other people's stories, or would like to share yours contact us at Support@hbasupport.org, join us on Facebook or sign up to our newsletter below.
The more that brain aneurysms are understood, the better the possible outcomes for patients and their families.
We're interested in working with individuals and organisations who share similar goals and values so that we can create new opportunities, support people affected and improve patient support and research.
HBA is a Charity. Everything we do is for the benefit of people living with brain aneurysms patients and their families.
We are committed to open and transparent practice and putting in place a robust independent governance structure which includes a patient forum, an advisory panel and an executive committee. If you’d like to get involved and help grow our community then get in touch.