Latest News and Stories

HBA Support Responds to NHS 10-Year Health Plan Consultation

Dec 23 min read

HBA Support Responds to NHS 10-Year Health Plan Consultation

HBA Support welcomes the opportunity to share our views on the NHS 10-Year Plan and how the NHS could better screen, support, and treat our

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Have your voice heard: Have you ever had screening for brain aneurysms? Tell us your experiences.

HBA Support

Oct 162 min read

Have your voice heard: Have you ever had screening for brain aneurysms? Tell us your experiences.

Research Participation Opportunity: Have you ever had screening for brain aneurysms? Tell us your experiences.

397 views

Finding the Hidden Connection: Menopause and Brain Aneurysms: Our Pledge to build Greater Awareness and Research

HBA Support

Oct 163 min read

Finding the Hidden Connection: Menopause and Brain Aneurysms: Our Pledge to build Greater Awareness and Research

After menopause women are 2.2 times more likely to develop aneurysms than men. We pledge to create greater awareness, research, and support.

45 views

Have your voice heard: What are the experiences of families with a diagnosis of Familial Aneurysm Syndrome?

HBA Support

Sep 252 min read

Have your voice heard: What are the experiences of families with a diagnosis of Familial Aneurysm Syndrome?

Could you help us answer this question: What are the experiences of families with a diagnosis of Familial Aneurysm Syndrome?

390 views

Rebecca's Diagnosis Story: From Darkness to Light

HBA Support

Sep 33 min read

Rebecca's Diagnosis Story: From Darkness to Light

Hereditary Brain Aneurysm Support (HBA Support) started as a personal mission but quickly grew into a community of support and information

63 views

HBA Support

Sep 23 min read

Hope on the Horizon: HBA Support’s Research Initiatives

Here's a look at our current research initiatives, how they are bringing hope to patients and families

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Andy Motch - Living with a brain aneurysm and finding a new lease of life

HBA Support

Aug 63 min read

Andy Motch - Living with a brain aneurysm and finding a new lease of life

Knowing there are others going through the same thing provided Andy with much-needed support and understanding.

763 views

HBA Support

May 233 min read

HBA Support Newsletter - May 2024

Welcome to Hereditary Brain Aneurysm Supports first regular newsletter

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Dawn Roberts' Hereditary Brain Aneurysm Journey

David Salmon

Apr 304 min read

Dawn Roberts' Hereditary Brain Aneurysm Journey

Dawn Roberts, a 63-year-old Optometrist from West Yorkshire, shares here story.

103 views

HBA Support contributes to major new Genetic Alliance Report for Rare Disease Day 2024

David Salmon

Feb 294 min read

HBA Support contributes to major new Genetic Alliance Report for Rare Disease Day 2024

By recording the incidence of the condition, we can gain a better understanding of its natural history and generational impact.

56 views

Deborah Johnston’s Hereditary Brain Aneurysm Journey

David Salmon

Feb 283 min read

Deborah Johnston’s Hereditary Brain Aneurysm Journey

Deborah Johnston's story from diagnosis through to treatment and finding a community.

143 views

HBA Support

Dec 31, 20231 min read

HBA Support's wrap-up, 2023

As 2023 draws to a close, we wanted to reflect on the achievements of HBA Support in 2023 and say a big thank you to our community - our...

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HBA Support

Dec 4, 20231 min read

HBA Support at BRAIN Conference 2023

BRAIN Conference is an annual event led by course directors Paul Bhogal, Levansri Makalanda and Oliver Spooner of Barts Health NHS Trust.

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Webinar: Are Brain Aneurysms Hereditary?

HBA Support

Sep 11, 20231 min read

Webinar: Are Brain Aneurysms Hereditary?

A common question for people at risk of or diagnosed with a brain aneurysm is, "Is this hereditary?".

39 views0 comments

Celebrating One Year of Hereditary Brain Aneurysm Support

HBA Support

Sep 9, 20234 min read

Celebrating One Year of Hereditary Brain Aneurysm Support

Celebrating One Year of Hereditary Brain Aneurysm Support: A Journey towards Hope and Holistic Care

14 views0 comments

HBA Support

Sep 5, 20233 min read

Is it Hereditary?

The idea that brain aneurysms might run in the family can be distressing, and we're here to offer guidance and support.

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Should I Get Screened for Hereditary Brain Aneurysms?

HBA Support

Sep 3, 20233 min read

Should I Get Screened for Hereditary Brain Aneurysms?

In the world of hereditary brain aneurysms, screening is a common topic for those who might have a higher risk due to family connections.

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HBA Support

Aug 2, 20232 min read

HBA Targeted Literature Review

Studies have shown that people with a family history of brain aneurysms are more likely to have an aneurysm themselves.

62 views0 comments

Reflections on the Economist Impact Cell and Gene Therapy Conference

HBA Support

May 3, 20234 min read

Reflections on the Economist Impact Cell and Gene Therapy Conference

We need the ‘Davids’ and ‘Goliaths’ to collaborate, building an eco-system that empowers patient partnerships.

7 views0 comments

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