Latest News and Stories

Research study exploring what it means to live with familial (hereditary) intracranial aneurysms (FIAs) by Lily George, MSc Genetic and Genomic Counselling at Cardiff University

If you've been affected by a brain aneurysm, please share your experiences and views on how imaging, risk and new technology like artificial intelligence are used in care.

Hereditary Brain Aneurysm Support is proud to launch the Patient and Family Advisory Panel (PFAP), a new voluntary group bringing together the voices of people and families affected by brain aneurysms to help shape the future of our work.

Dawn Roberts discovered she had a hereditary brain aneurysm after her daughter suffered a life-threatening rupture. Following successful endovascular surgery to treat the aneurysm, she is now three years post-treatment and living life to the full. Dawn describes herself as grateful and more positive than ever, enjoying time outdoors with her animals and family. As a trustee for HBA Support, she now uses her experience to help others feel informed and reassured.

The ‘Kim Kardashian Effect’ – Sharing Facts not Fear about brain aneurysms in the National Media

After menopause women are 2.2 times more likely to develop aneurysms than men. We pledge to create greater awareness, research, and support.

Our first Brain Aneurysm Friends Peer Support Group showed the value of having a safe space where people can talk, share, and simply be understood. Thank you to those who joined this first session and helped create such a positive, encouraging atmosphere.

Being diagnosed with a brain aneurysm can feel overwhelming. There are often more questions than answers, and it can be hard to know what’s within your control. At HBA Support, we've created a guide to give people the best possible information to live well with their condition.

A world-leading, landmark research initiative aims to lay the foundation for the country’s first genetic screening programme for brain aneurysms—potentially reshaping how the NHS identifies and manages a life-threatening but often overlooked condition that can devastate families for generations. 

How we will engage directly with policymakers, NHS leaders, clinicians and researchers to highlight the gaps Fit for the Future: 10-Year Health Plan for England leaves behind

In Memory of Steve Shotter: “No one explained about brain aneurysms. We didn’t know.”

What the UK’s largest neurological survey reveals about life with a brain aneurysm

Brain Aneurysms: Causes, Symptoms, Diagnosis, Treatment and how to live well with a brain aneurysm

The Dear Annie I Hate You play is a conversation and a window into brain aneurysms that urgently needs a louder voice and a better understanding. Read more about the play and the emotions from a brain aneurysm patients perspective.

HBA Support launches research reveals shocking gaps in screening and unequal care for people with hereditary brain aneurysms.

HBA Support welcomes the opportunity to share our views on the NHS 10-Year Plan and how the NHS could better screen, support, and treat our

By recording the incidence of the condition, we can gain a better understanding of its natural history and generational impact.

Deborah Johnston's story from diagnosis through to treatment and finding a community.

The idea that brain aneurysms might run in the family can be distressing, and we're here to offer guidance and support.

In the world of hereditary brain aneurysms, screening is a common topic for those who might have a higher risk due to family connections.