Latest News and Stories

Department of Health and Social Care published the Cardiovascular Disease Modern Services Framework (MSF) but brain aneurysms and SAHs are missing.

New report shows that people who waited at home were almost ten times more likely to face a second delay once they reached care. One delay often led to another.

Read our first Impact Report, a report shaped by patients, families, survivors and supporters who know what it means to live with hereditary brain aneurysms.

"I have 75 percent of a brain left," she says. "But I think my brain is better now than it ever was before my stroke. We have to make the most of what we have got, rather than worry about what we haven't. If I can help just one person feel less alone, then it's worth it."

“Scan‑anxiety” is real. Wherever you are in your journey - newly diagnosed with a brain aneurysm, years into monitoring, post‑treatment, or supporting someone you love - your feelings around scan time are valid. They are shared. And you are not alone.

In the course of the year, we raised over £9,000. We walked 70-odd miles of the South West Coast Path, climbed Ben Nevis at sunrise, did Hadrian's Wall through the night, ran a half marathon as Crash Bandicoot, and finished with a 26.2-mile Santa run to the London Stadium. Here’s a rundown of one of the most challenging and enjoyable years of my life!

Our open letter has now been delivered directly to the Secretary of State for Health and Social Care, via supporting MPs, and into the hands of key decision makers across DHSC and NHS England — ensuring our community’s voice is heard clearly, loudly, and unavoidably by those with the power to act.

My healthy, 49-year-old mother was rushed to the ER with sudden nausea and within hours doctors found three brain aneurysms, one already ruptured

Research study exploring what it means to live with familial (hereditary) intracranial aneurysms (FIAs) by Lily George, MSc Genetic and Genomic Counselling at Cardiff University

If you've been affected by a brain aneurysm, please share your experiences and views on how imaging, risk and new technology like artificial intelligence are used in care.

Hereditary Brain Aneurysm Support is proud to launch the Patient and Family Advisory Panel (PFAP), a new voluntary group bringing together the voices of people and families affected by brain aneurysms to help shape the future of our work.

Dawn Roberts discovered she had a hereditary brain aneurysm after her daughter suffered a life-threatening rupture. Following successful endovascular surgery to treat the aneurysm, she is now three years post-treatment and living life to the full. Dawn describes herself as grateful and more positive than ever, enjoying time outdoors with her animals and family. As a trustee for HBA Support, she now uses her experience to help others feel informed and reassured.

The ‘Kim Kardashian Effect’ – Sharing Facts not Fear about brain aneurysms in the National Media

After menopause women are 2.2 times more likely to develop aneurysms than men. We pledge to create greater awareness, research, and support.

Our first Brain Aneurysm Friends Peer Support Group showed the value of having a safe space where people can talk, share, and simply be understood. Thank you to those who joined this first session and helped create such a positive, encouraging atmosphere.

Being diagnosed with a brain aneurysm can feel overwhelming. There are often more questions than answers, and it can be hard to know what’s within your control. At HBA Support, we've created a guide to give people the best possible information to live well with their condition.

A world-leading, landmark research initiative aims to lay the foundation for the country’s first genetic screening programme for brain aneurysms—potentially reshaping how the NHS identifies and manages a life-threatening but often overlooked condition that can devastate families for generations.

How we will engage directly with policymakers, NHS leaders, clinicians and researchers to highlight the gaps Fit for the Future: 10-Year Health Plan for England leaves behind

In Memory of Steve Shotter: “No one explained about brain aneurysms. We didn’t know.”

What the UK’s largest neurological survey reveals about life with a brain aneurysm