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Latest News and Stories
A turning point in the fight for better brain aneurysm care
Our open letter has now been delivered directly to the Secretary of State for Health and Social Care, via supporting MPs, and into the hands of key decision makers across DHSC and NHS England — ensuring our community’s voice is heard clearly, loudly, and unavoidably by those with the power to act.
Breaking The Silence: HBA Support Launches Landmark Report On Hereditary Brain Aneurysms At The Houses Of Parliament
After nearly two years research and listening to our community, we’re proud to share with you our report “From Silent Risk To Real Recognition: Ending the neglect of hereditary brain aneurysms and transforming care." The report reveals fragmented care pathways, lack of psychosocial support, inconsistent access to screening, and hundreds of preventable ruptures every year.
Simran’s story: From rare brain aneurysm diagnosis to miraculous recovery
My healthy, 49-year-old mother was rushed to the ER with sudden nausea and within hours doctors found three brain aneurysms, one already ruptured
Families living with familial (hereditary) brain aneurysms: Lily George’s research
Research study exploring what it means to live with familial (hereditary) intracranial aneurysms (FIAs) by Lily George, MSc Genetic and Genomic Counselling at Cardiff University
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