Introducing HBA Support

 Hereditary Brain Aneurysm Support (HBA Support) is a new not-for-profit organisation, set up to provide information and support for people affected by hereditary brain aneurysms and their families.

Our aim is to support people affected by hereditary brain aneurysms, building a community that works with families that have been given a hereditary brain aneurysm diagnosis, or suspect there is a pattern or cluster in their family. We will  support people affected, improve patient information and increase research and understanding into brain aneurysms that run in families. 


Creating a HBA Community

HBA Support is a new organisation with a mission. We’re working hard to support and inform people affected by the familial condition. We’re building a community and connections with researchers and experts to raise awareness and understanding of hereditary brain aneurysms. We want to help people share their experiences to support other families affected, improving the knowledge and understanding of this rare disease.

Together, we’ll work to increase research and understanding of hereditary brain aneurysms within the medical and research community and wider society.


Hereditary Brain Aneurysm Support

What is a brain aneurysm?

An aneurysm is a bulge in a blood vessel caused by a weakness in the blood vessel wall, usually where it branches.

Thousands of people live well with brain aneurysms without knowing they carry one. It’s only when they rupture (burst) that they can be fatal or life-changing for the person and their family.

When a rupture happens, it is usually very sudden and without warning.

Are brain aneurysms


Most cases of brain aneurysms are sporadic, meaning they are sudden and have no genetic hereditary pattern. However, sometimes cases of brain aneurysms cluster or run in families. This is rare but when it happens, it can impact families severely.

If you have a strong family history of brain aneurysms there is 2.3% to 29.4% chance of having an unruptured brain aneurysm, compared with 0.2% - 8.8% of the general population.


Support available to those with no family history

If you are living with the impact of a sudden subarachnoid haemorrhage or a burst aneurysm with no family history, our friends at the Brain and Spine Foundation can help. There are also other organisations that can help on our Information and Support pages.

Get involved

Get involved and help others. If you have been impacted by familial or hereditary brain aneurysms, we need your help. Sharing your story could help other people and improve understanding across the NHS and in the research community. We’re also looking for skilled volunteers and patient representatives to help grow our new organisation and achieve our goals.

If you or your family have been impacted by hereditary brain aneurysms and you have skills and time to share, please get in touch. Our new and friendly organisation would love to hear from you.


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HBA Support, CIC
Community Interest Company (CIC) Company number: 13428276.

HBA Support is a voluntary and non-medical organisation. We take no responsibility for an individual’s health. For any concerns or worries, please always speak to your GP or a clinical professional.