The inaugural meeting of the Vascular Voice Network took place this September, bringing together a diverse group of voices from across the vascular health community. Representatives from both large, well-established charities and smaller, rare disease organisations were able to share expertise and experience, creating a united platform to share research, best practices, and community experiences.
The meeting was a fantastic opportunity to bring all these perspectives together around one table. From common vascular conditions to rare diseases, the passion and commitment to advancing the support and visibility of those affected by vascular issues was inspiring to see. The energy and ambition in the room set a positive tone for what promises to be a groundbreaking initiative for the sector.
Rebecca Middleton, Founder and CEO of HBA Support, shared her enthusiasm: “It was inspiring to see so many dedicated individuals and organisations come together to launch the Vascular Voice Network. This is a significant step towards amplifying the voices of all those impacted by vascular conditions. We’re grateful for the support we’ve received and look forward to building a collaborative network that can truly make a difference.”
A special thanks to Dr Charles Steward and the Genomics England team for all their support and for hosting our first meeting at their offices in Canary Wharf – a great venue to collaborate and share ideas. Special thanks also goes to Nick Mead from Genetic Alliance for his expert chairing of the first meeting and to all our partners for their invaluable support in bringing this idea to life.
Moving forward, the Vascular Voice Network will focus on building a collaborative platform, with further updates and meetings planned for later this year and in 2025. We are excited to see how this network will evolve and continue to welcome all voices and perspectives as we work towards our common goals.
Thank you to everyone who participated and supported us in this important first step. We look forward to sharing more as we continue this journey together.
For further information, or to express an interest, please contact: support@hbasupport.org
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