Latest News and Stories

New report shows that people who waited at home were almost ten times more likely to face a second delay once they reached care. One delay often led to another.

Read our first Impact Report, a report shaped by patients, families, survivors and supporters who know what it means to live with hereditary brain aneurysms.

Our open letter has now been delivered directly to the Secretary of State for Health and Social Care, via supporting MPs, and into the hands of key decision makers across DHSC and NHS England — ensuring our community’s voice is heard clearly, loudly, and unavoidably by those with the power to act.

After nearly two years research and listening to our community, we’re proud to share with you our report “From Silent Risk To Real Recognition: Ending the neglect of hereditary brain aneurysms and transforming care." The report reveals fragmented care pathways, lack of psychosocial support, inconsistent access to screening, and hundreds of preventable ruptures every year.

Hereditary Brain Aneurysm Support is proud to launch the Patient and Family Advisory Panel (PFAP), a new voluntary group bringing together the voices of people and families affected by brain aneurysms to help shape the future of our work.

A world-leading, landmark research initiative aims to lay the foundation for the country’s first genetic screening programme for brain aneurysms—potentially reshaping how the NHS identifies and manages a life-threatening but often overlooked condition that can devastate families for generations.