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Latest HBA News


We’re here to help you live well with a brain aneurysm
Being diagnosed with a brain aneurysm can feel overwhelming. There are often more questions than answers, and it can be hard to know what’s within your control. At HBA Support, we've created a guide to give people the best possible information to live well with their condition.
6 days ago


PRESS RELEASE: World-first UK genetics study, ROAR-DNA, could transform NHS care for brain aneurysms
A world-leading, landmark research initiative aims to lay the foundation for the country’s first genetic screening programme for brain aneurysms—potentially reshaping how the NHS identifies and manages a life-threatening but often overlooked condition that can devastate families for generations.
Aug 27


Maria’s story: from brain aneurysm survivor to inspiring volunteer
Maria’s story: from brain aneurysm survivor to inspiring volunteer. Her family were told that even if she survived, she would likely be left severely disabled. Today, just over 18 months on, Maria has defied every expectation. "Giving back like that feels like part of my recovery too.”.
Aug 27


Bridging the Gap: Patients and Clinicians Speak Up to Shape Brain Aneurysm Support
We are committed to listening to people and families impacted by brain aneurysms, and making sure our communities voice is heard.
Jul 28


Fit for the Future: NHS 10-Year Health Plan for England: Why thousands of people at risk of hereditary brain aneurysms were left out of the 10-Year Health Plan, and what we’re doing next
How we will engage directly with policymakers, NHS leaders, clinicians and researchers to highlight the gaps Fit for the Future: 10-Year Health Plan for England leaves behind
Jul 10


In loving memory of Steve Shotter
In Memory of Steve Shotter: “No one explained about brain aneurysms. We didn’t know.”
Jul 8


“I didn’t know what support was out there”: What the UK’s largest neurological survey reveals about life with a brain aneurysm
What the UK’s largest neurological survey reveals about life with a brain aneurysm
Jun 25


Brain Aneurysms: Causes, Symptoms, Diagnosis, Treatment, and FAQs
Brain Aneurysms: Causes, Symptoms, Diagnosis, Treatment and how to live well with a brain aneurysm
Jun 10


Dear Annie, I Hate You! A Brain Aneurysm play shouting bravely about our silent condition
The Dear Annie I Hate You play is a conversation and a window into brain aneurysms that urgently needs a louder voice and a better understanding. Read more about the play and the emotions from a brain aneurysm patients perspective.
Jun 10


Connie’s Legacy – Finding Support, Strength and Purpose After Sudden Loss
When Lorna Meijer lost her mother, Connie, suddenly in April 2024 to a ruptured brain aneurysm, the shock was overwhelming.
May 21


Exposing the gaps in care for hereditary brain aneurysms
HBA Support launches research reveals shocking gaps in screening and unequal care for people with hereditary brain aneurysms.
Feb 6


HBA Support Responds to NHS 10-Year Health Plan Consultation
HBA Support welcomes the opportunity to share our views on the NHS 10-Year Plan and how the NHS could better screen, support, and treat our
Dec 2, 2024


Have your voice heard: Have you ever had screening for brain aneurysms? Tell us your experiences.
Research Participation Opportunity: Have you ever had screening for brain aneurysms? Tell us your experiences.
Oct 16, 2024


Finding the Hidden Connection: Menopause and Brain Aneurysms: Our Pledge to build Greater Awareness and Research
After menopause women are 2.2 times more likely to develop aneurysms than men. We pledge to create greater awareness, research, and support.
Oct 16, 2024


Have your voice heard: What are the experiences of families with a diagnosis of Familial Aneurysm Syndrome?
Could you help us answer this question: What are the experiences of families with a diagnosis of Familial Aneurysm Syndrome?
Sep 25, 2024


Hope on the Horizon: HBA Support’s Research Initiatives
Here's a look at our current research initiatives, how they are bringing hope to patients and families
Sep 2, 2024


Marjory Hale – A Brain Aneurysm Survivor’s Story
Marjory Hale began experiencing persistent one-sided pain behind her eye that wouldn’t go away, similar to her brother's ruptured aneurysm
Aug 6, 2024


Andy Motch - Living with a brain aneurysm and finding a new lease of life
Knowing there are others going through the same thing provided Andy with much-needed support and understanding.
Aug 6, 2024


HBA Support Newsletter - May 2024
Welcome to Hereditary Brain Aneurysm Supports first regular newsletter
May 23, 2024


Dawn Roberts' Hereditary Brain Aneurysm Journey
Dawn Roberts, a 63-year-old Optometrist from West Yorkshire, shares here story.
Apr 30, 2024


HBA Support contributes to major new Genetic Alliance Report for Rare Disease Day 2024
By recording the incidence of the condition, we can gain a better understanding of its natural history and generational impact.
Feb 29, 2024


Deborah Johnston’s Hereditary Brain Aneurysm Journey
Deborah Johnston's story from diagnosis through to treatment and finding a community.
Feb 28, 2024


Unraveling the Risk of Unruptured Brain Aneurysms: The ROAR Study
Unruptured brain aneurysms are fragile bulges in the walls of brain arteries. While often asymptomatic, they carry the potential to...
Feb 14, 2024


Should I Get Screened for Hereditary Brain Aneurysms?
In the world of hereditary brain aneurysms, screening is a common topic for those who might have a higher risk due to family connections.
Sep 4, 2023
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