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Latest HBA News


Simran’s story: From rare brain aneurysm diagnosis to miraculous recovery
My healthy, 49-year-old mother was rushed to the ER with sudden nausea and within hours doctors found three brain aneurysms, one already ruptured
Dec 10, 2025


Families living with familial (hereditary) brain aneurysms: Lily George’s research
Research study exploring what it means to live with familial (hereditary) intracranial aneurysms (FIAs) by Lily George, MSc Genetic and Genomic Counselling at Cardiff University
Nov 20, 2025


Help shape brain aneurysm research – take part in ROAR Study Research
If you've been affected by a brain aneurysm, please share your experiences and views on how imaging, risk and new technology like artificial intelligence are used in care.
Nov 18, 2025


Introducing our new Patient and Family Brain Aneurysm Advisory Panel – Your Community Needs You!
Hereditary Brain Aneurysm Support is proud to launch the Patient and Family Advisory Panel (PFAP), a new voluntary group bringing together the voices of people and families affected by brain aneurysms to help shape the future of our work.
Nov 4, 2025


Dawn Roberts – finding balance and gratitude after brain aneurysm treatment
Dawn Roberts discovered she had a hereditary brain aneurysm after her daughter suffered a life-threatening rupture. Following successful endovascular surgery to treat the aneurysm, she is now three years post-treatment and living life to the full. Dawn describes herself as grateful and more positive than ever, enjoying time outdoors with her animals and family. As a trustee for HBA Support, she now uses her experience to help others feel informed and reassured.
Nov 4, 2025


The ‘Kim Kardashian Effect’ – Sharing Facts not Fear about brain aneurysms in the National Media
The ‘Kim Kardashian Effect’ – Sharing Facts not Fear about brain aneurysms in the National Media
Oct 28, 2025


UPDATED 2025 - Finding The Hidden Connection Between Menopause And Brain Aneurysms: Our Pledge To Build Greater Awareness And Research
After menopause women are 2.2 times more likely to develop aneurysms than men. We pledge to create greater awareness, research, and support.
Oct 7, 2025


Finding strength together: Our first peer support session
Our first Brain Aneurysm Friends Peer Support Group showed the value of having a safe space where people can talk, share, and simply be understood. Thank you to those who joined this first session and helped create such a positive, encouraging atmosphere.
Sep 30, 2025


We’re here to help you live well with a brain aneurysm
Being diagnosed with a brain aneurysm can feel overwhelming. There are often more questions than answers, and it can be hard to know what’s within your control. At HBA Support, we've created a guide to give people the best possible information to live well with their condition.
Sep 12, 2025


PRESS RELEASE: World-first UK genetics study, ROAR-DNA, could transform NHS care for brain aneurysms
A world-leading, landmark research initiative aims to lay the foundation for the country’s first genetic screening programme for brain aneurysms—potentially reshaping how the NHS identifies and manages a life-threatening but often overlooked condition that can devastate families for generations.
Aug 27, 2025


Maria’s story: from brain aneurysm survivor to inspiring volunteer
Maria’s story: from brain aneurysm survivor to inspiring volunteer. Her family were told that even if she survived, she would likely be left severely disabled. Today, just over 18 months on, Maria has defied every expectation. "Giving back like that feels like part of my recovery too.”.
Aug 27, 2025


Bridging the Gap: Patients and Clinicians Speak Up to Shape Brain Aneurysm Support
We are committed to listening to people and families impacted by brain aneurysms, and making sure our communities voice is heard.
Jul 28, 2025


Fit for the Future: NHS 10-Year Health Plan for England: Why thousands of people at risk of hereditary brain aneurysms were left out of the 10-Year Health Plan, and what we’re doing next
How we will engage directly with policymakers, NHS leaders, clinicians and researchers to highlight the gaps Fit for the Future: 10-Year Health Plan for England leaves behind
Jul 10, 2025


In loving memory of Steve Shotter
In Memory of Steve Shotter: “No one explained about brain aneurysms. We didn’t know.”
Jul 8, 2025


“I didn’t know what support was out there”: What the UK’s largest neurological survey reveals about life with a brain aneurysm
What the UK’s largest neurological survey reveals about life with a brain aneurysm
Jun 25, 2025


Brain Aneurysms: Causes, Symptoms, Diagnosis, Treatment, and FAQs
Brain Aneurysms: Causes, Symptoms, Diagnosis, Treatment and how to live well with a brain aneurysm
Jun 10, 2025


Dear Annie, I Hate You! A Brain Aneurysm play shouting bravely about our silent condition
The Dear Annie I Hate You play is a conversation and a window into brain aneurysms that urgently needs a louder voice and a better understanding. Read more about the play and the emotions from a brain aneurysm patients perspective.
Jun 10, 2025


Connie’s Legacy – Finding Support, Strength and Purpose After Sudden Loss
When Lorna Meijer lost her mother, Connie, suddenly in April 2024 to a ruptured brain aneurysm, the shock was overwhelming.
May 21, 2025


Exposing the gaps in care for hereditary brain aneurysms
HBA Support launches research reveals shocking gaps in screening and unequal care for people with hereditary brain aneurysms.
Feb 6, 2025


HBA Support Responds to NHS 10-Year Health Plan Consultation
HBA Support welcomes the opportunity to share our views on the NHS 10-Year Plan and how the NHS could better screen, support, and treat our
Dec 2, 2024


Have your voice heard: Have you ever had screening for brain aneurysms? Tell us your experiences.
Research Participation Opportunity: Have you ever had screening for brain aneurysms? Tell us your experiences.
Oct 16, 2024


Have your voice heard: What are the experiences of families with a diagnosis of Familial Aneurysm Syndrome?
Could you help us answer this question: What are the experiences of families with a diagnosis of Familial Aneurysm Syndrome?
Sep 25, 2024


Rebecca's Diagnosis Story: From Darkness to Light
Hereditary Brain Aneurysm Support (HBA Support) started as a personal mission but quickly grew into a community of support and information
Sep 3, 2024


Hope on the Horizon: HBA Support’s Research Initiatives
Here's a look at our current research initiatives, how they are bringing hope to patients and families
Sep 2, 2024


Marjory Hale – A Brain Aneurysm Survivor’s Story
Marjory Hale began experiencing persistent one-sided pain behind her eye that wouldn’t go away, similar to her brother's ruptured aneurysm
Aug 6, 2024


Andy Motch - Living with a brain aneurysm and finding a new lease of life
Knowing there are others going through the same thing provided Andy with much-needed support and understanding.
Aug 6, 2024


HBA Support Newsletter - May 2024
Welcome to Hereditary Brain Aneurysm Supports first regular newsletter
May 23, 2024


HBA Support contributes to major new Genetic Alliance Report for Rare Disease Day 2024
By recording the incidence of the condition, we can gain a better understanding of its natural history and generational impact.
Feb 29, 2024


Deborah Johnston’s Hereditary Brain Aneurysm Journey
Deborah Johnston's story from diagnosis through to treatment and finding a community.
Feb 28, 2024


Unraveling the Risk of Unruptured Brain Aneurysms: The ROAR Study
Unruptured brain aneurysms are fragile bulges in the walls of brain arteries. While often asymptomatic, they carry the potential to...
Feb 14, 2024


Should I Get Screened for Hereditary Brain Aneurysms?
In the world of hereditary brain aneurysms, screening is a common topic for those who might have a higher risk due to family connections.
Sep 3, 2023
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